On Friday I had a Cystoscopy and Hydro-Distention of the bladder. This is a pretty common procedure for IC patients. I think it was my 3rd Cystoscopy and my 2nd HD. Anyways, I got knocked out for the procedure (and got my new IUD inserted too) and when I woke up and finally was lucid I discovered something horrible. I couldn't pee. That's right, here I am with a disease that makes me pee all the time and I couldn't get my bladder to work. Turns out this is potential side effect of the this procedure about which nobody had warned me.
So now we cut to what happens when a woman with IC can't pee. Also known as the ironic twist to this story. I went to urgent care that night and they inserted a catheter to drain my bladder and then they let me rest to see if my bladder would finally work properly. After a good solid hour it became clear that my bladder had, at least temporarily, gone on strike. I couldn't pee. Let me just say that as woman with IC, who often has to pee every hour or more, not being able to pee was even worse than peeing every 10 minutes. The pain was horrible.
The doctors at Urgent Care decided the best thing to do was to insert a foley catheter with a bag so that my bladder could just relax and drain easily. So they inserted this torture device into me and sent me home with instructions to return the following day.
Let me be clear. They sent me home with a bag that would collect my urine. I think now would be the best time to say that I had asked my new boyfriend (of only 2 months) to accompany me to the earlier procedure and to urgent care. We then went home, watched some TV, and went to bed. All while I was "wearing" a bag of my own urine.
This was quite possibly the most embarrassing moment of my entire life.
I barely slept.
The next morning, urgent care removed the catheter and I was able to pee normally. I have never been so happy to pee in all my life.
However, now I have a yeast infection (I believe) because of the antibiotics I had to take after the procedure and which are even more important since I just spent an entire night with a catheter inserted into my urethra.
And that is a summary of the worst night of my IC.
Monday, December 19, 2011
Monday, December 5, 2011
IC and the common cold
So I have IC. It's annoying and painful and it limits the way I live. But I have gotten used to it. No use crying over uneaten chocolate. There is one thing that is really getting to me though. I miss cold medicine. More specifically I miss Psuedophed, Nyquil, and that nasty tasting thera-flu. Now that I have IC all those drugs are on the "no-no" list. They would cause a flare just as soon as they made me feel slightly relieved of my cold symptoms. Then where would I be? I'd be sick, congested, coughing, sneezing, and in the ladies room every ten minutes with constant bladder pain. No thank you. I will take my illnesses one at a time please.
But this leaves me, and everyone else with IC, in a bit of a bind over what to do when we get a cold. Its like I am living in the dark ages. I have been sick now for four days and I think I have found some good coping mechanisms. I am going to share them with you dear readers and if you happen to know any other cold coping strategies please feel free to post them to comments.
1. Hot Tea (Peppermint or Chamomile) I don't know why but hot tea seems to at least make me feel a bit better when I am sick. Plus if I add honey to my tea it coats my sore throat. Since I can't have OTC broth and I am too lazy and currently too sick to make broth for myself, hot tea has become the substitute.
2. Afrin nasal spay. However, one must be aware that this stuff is highly addictive. It can only be used for three days tops if you use it every 12 hours as the dosage instructs. Maybe you can stretch it to 5 days if you only use it at night. Afrin (and its competing brands) nasal spray is a great drug. I went from severely congested and feeling like I was drowning to breathing freely for about 8 to 10 hours. This is perfect for when I need to sleep. Its also the only decongestant that doesn't make my bladder cry out in pain.
3. Advil. This stuff is great. It brings down fever and it also brings down the inflammation in my nasal passages that restrict my breathing.
4. Dye-free Benadryl. It helps me breathe a bit more easily and makes me sleepy enough that I can rest my way into better health.
5. Go to the Doctor or urgent care and get a prescription for better drugs. I can't take OTC cough medicine but I can take Tessalon Pearls (http://www.medicinenet.com/benzonatate/article.htm).
6. (I can't do this but I know from others that it works) Neti Pots and Nasal Rinse. Flushing out the sinuses really helps alleviate cold symptoms. Its safe for IC patients as its drug free. Its a bit uncomfortable but not painful. Why don't I do it? I am one of the very few people who have ears nose and throat issues that prevent me from using a Neti pot or a nasal rinse. I get water behind my ears when I do it. But I am the exception. Try it for yourself and see if it helps you.
7. Nasal Saline Spray- Like Afrin but not as effective or addictive as its drug free. It keeps your nasal mucus membrane moist and that will help make you feel much better.
8. Rest and push fluids. Really. Don't think you can just "push through". If you have IC then you get sick with a cold its going to make you more likely to flare. Let's face it. Stress makes this disease worse. So when sick, rest and push fluids.
9. Eat simply. Now is not the time to try new foods. In fact the best way I have found to prevent a flare up that can follow a cold is to keep my diet as simple as possible.
10. (because I really wanted list of 10 things) Stay on all my regular IC meds and supplements. Though I when I am sick I add Colostrum to my supplements as it helps booster the immune system and doesn't anger the bladder.
For more information from a trusted source follow this link..http://www.ichelp.org/page.aspx?pid=964
And remember wash your hands frequently, get your flu shot, avoid people who are sick (send them a card or an email telling them you still love them but not their germs), and get lots of rest during the cold and flu season.
I hope you all stay healthy and flare free.
The Goose Girl
But this leaves me, and everyone else with IC, in a bit of a bind over what to do when we get a cold. Its like I am living in the dark ages. I have been sick now for four days and I think I have found some good coping mechanisms. I am going to share them with you dear readers and if you happen to know any other cold coping strategies please feel free to post them to comments.
1. Hot Tea (Peppermint or Chamomile) I don't know why but hot tea seems to at least make me feel a bit better when I am sick. Plus if I add honey to my tea it coats my sore throat. Since I can't have OTC broth and I am too lazy and currently too sick to make broth for myself, hot tea has become the substitute.
2. Afrin nasal spay. However, one must be aware that this stuff is highly addictive. It can only be used for three days tops if you use it every 12 hours as the dosage instructs. Maybe you can stretch it to 5 days if you only use it at night. Afrin (and its competing brands) nasal spray is a great drug. I went from severely congested and feeling like I was drowning to breathing freely for about 8 to 10 hours. This is perfect for when I need to sleep. Its also the only decongestant that doesn't make my bladder cry out in pain.
3. Advil. This stuff is great. It brings down fever and it also brings down the inflammation in my nasal passages that restrict my breathing.
4. Dye-free Benadryl. It helps me breathe a bit more easily and makes me sleepy enough that I can rest my way into better health.
5. Go to the Doctor or urgent care and get a prescription for better drugs. I can't take OTC cough medicine but I can take Tessalon Pearls (http://www.medicinenet.com/benzonatate/article.htm).
6. (I can't do this but I know from others that it works) Neti Pots and Nasal Rinse. Flushing out the sinuses really helps alleviate cold symptoms. Its safe for IC patients as its drug free. Its a bit uncomfortable but not painful. Why don't I do it? I am one of the very few people who have ears nose and throat issues that prevent me from using a Neti pot or a nasal rinse. I get water behind my ears when I do it. But I am the exception. Try it for yourself and see if it helps you.
7. Nasal Saline Spray- Like Afrin but not as effective or addictive as its drug free. It keeps your nasal mucus membrane moist and that will help make you feel much better.
8. Rest and push fluids. Really. Don't think you can just "push through". If you have IC then you get sick with a cold its going to make you more likely to flare. Let's face it. Stress makes this disease worse. So when sick, rest and push fluids.
9. Eat simply. Now is not the time to try new foods. In fact the best way I have found to prevent a flare up that can follow a cold is to keep my diet as simple as possible.
10. (because I really wanted list of 10 things) Stay on all my regular IC meds and supplements. Though I when I am sick I add Colostrum to my supplements as it helps booster the immune system and doesn't anger the bladder.
For more information from a trusted source follow this link..http://www.ichelp.org/page.aspx?pid=964
And remember wash your hands frequently, get your flu shot, avoid people who are sick (send them a card or an email telling them you still love them but not their germs), and get lots of rest during the cold and flu season.
I hope you all stay healthy and flare free.
The Goose Girl
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